Preemie Matters – February 2013

In this issue of Preemie Matters: Share Your Latest News with NPIHC • New Insights Into Preemie Brain Injury, New Avenues for Treatment • Multidisciplinary Guidelines for the Care of Late Preterm Infants • PREEMIE Reauthorization Act Introduced in U.S. Senate • Mothers & Babies Perinatal Network of South Central New York • NPIHC Video in the Making

Share Your Latest News with NPIHC

Friends and colleagues in the prematurity field: Do you have new resources, upcoming events, or other news to share? We want to hear from you! Please send your announcement our way and we can help spread the word via Preemie Matters, the NPIHC website, and the NPIHC Facebook page. For consideration, send email to agoodman@hmhb.org.

New Insights Into Preemie Brain Injury, New Avenues for Treatment

A discovery about brain injury among preemies may open avenues for potential therapies. A study published online in a January issue of the journal Science Translational Medicine finds that low blood and oxygen flow to the developing brain does not--as previously believed--cause an irreversible loss of brain cells. Instead, new findings suggest it disrupts the cells' ability to fully mature. Researchers say the discovery means new possibilities for therapies that would promote regeneration and repair of the premature infant's brain. According to Stephen Back, M.D., Ph.D., lead researcher and professor of pediatrics and neurology in the Pap-Family Pediatric Research Institute, OHSU Doernbecher Children's Hospital, "We can focus greater attention on developing the right interventions, at the right time early in development, to promote neurons to more fully mature and reduce the often serious impact of preterm birth. We now have a much more hopeful scenario."

Multidisciplinary Guidelines for the Care of Late Preterm Infants

The National Perinatal Association recently launched the Multidisciplinary Guidelines for the Care of Late Preterm Infants, a new tool for healthcare providers, parents, case managers, and others involved in the care of babies born between 34-36 6/7 weeks gestation. The guidelines--developed in collaboration with more than 20 healthcare professionals and organizations--provide evidence-based recommendations that focus on the management of late preterm infants from birth through childhood and can be used as a road map that provides guidance for the healthcare team and for families. The guidelines are available free of charge, in an easy-to-navigate PDF format, on the National Perinatal Association website.

PREEMIE Reauthorization Act Introduced in U.S. Senate

On February 7th the PREEMIE Reauthorization Act--bipartisan legislation intended to lower the nation's preterm birth rate--was introduced in the U.S. Senate. Similar legislation was introduced on February 6th in the U.S. House of Representatives. Senators Lamar Alexander (R-TN) and Michael Bennet (D-CO) and Representatives Anna Eshoo (D-CA) and Leonard Lance (R-NJ) introduced the bill, which would advance federal research and promote known interventions and community initiatives to reduce preterm birth and infant mortality caused by prematurity. This newly-introduced legislation is nearly identical to the bills that passed both the House and Senate during the 112th Congress. Congress adjourned before the Senate could reconsider its version with House amendments. The original PREEMIE Act (P.L. 109-450) brought the first-ever national focus to prematurity prevention, and the Surgeon General's Conference on the Prevention of Preterm Birth required by the Act generated a public-private agenda to spur innovative research at NIH and CDC.

Mothers & Babies Perinatal Network of South Central New York

Mothers & Babies Perinatal Network of South Central New York (M&BPN) works to improve pregnancy and birth outcomes in a region encompassing seven counties. As one of 16 New York State Perinatal Networks originally developed with funding from the New York State Department of Health, M&BPN strives to make positive change in health outcomes for women, infants, and families. They provide free or low-cost services for families, regional planning for maternal and child health programs, and education and referral services for individuals and families. They also partner with aligned organizations at the local, regional, and state level and promote policies, programs, and services for parenting families and teens. Additionally, M&BPN offers educational programming on child, family, and teen topics for the community, as well as professional education programs for health and human services. Visit the M&BPN website to learn more about their work.

NPIHC Video in the Making

We are in the final stages of production for a new video spotlighting the important work of the National Premature Infant Health Coalition. In support of the project, we issued an open call for photographs on NPIHC's Facebook page, inviting preemie parents to share snapshots of their children and families, documenting their journeys. We were so moved by the overwhelmingly generous response, and look forward to incorporating as many of these images as possible into the final video. Just another example of how social media is creating new opportunities for connecting, communicating, educating, and advocating in the field of prematurity and maternal and child health. Stay tuned for the video release!

Sources:

• www.npihc.org
• http://stm.sciencemag.org
• www.nationalperinatal.org
• http://thomas.loc.gov/home/thomas.php
• www.mothersandbabies.org

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters – January 2013

In this issue of Preemie Matters: NPIHC's Membership • Reducing Preterm Birth's in Illinois • AAP Updates Screening Guide for Retinopathy of Prematurity • Knowledge Path on Perinatal Maternal Stress & Child Outcomes • HMHB & HER Foundation Blog About HG • Graham's Foundation

NPIHC Membership

NPIHC recently updated the vision, mission and goals of the Coalition and we're looking forward to expanding membership in the New Year. If you work in the field of prematurity or know someone who does, consider filling out a membership application and become involved in this unique coalition of professionals, clinicians, community health members, and families working toward improving the lives or premature infants and their families. NPIHC membership is open to any nonprofit organization, agency, or institution which has a stake or professional interest in the issues surrounding prematurity. There is no fee for membership. Other potential members are considered on a case-by-case basis, subject to approval by the NPIHC steering committee. For those who don't meet membership criteria but would like to get involved, we encourage you to become a "Friend" of the Coalition in a less formal capacity. To learn more, contact us at NPIHC@hmhb.org.

Reducing Preterm Births in Illinois

With a renewed national focus on prematurity by public health organizations, and the severe global toll of preterm birth, in 2010 the Illinois General Assembly passed House Joint Resolution 111. The resolution stipulated that the Perinatal Advisory Committee of the Illinois Department of Public Health submit a written report by November 2012 providing findings and recommendations on the reduction of preterm births in Illinois. The report, "Preterm Birth in Illinois: Understanding the Problem, Forging a Solution," raises awareness among policymakers, advocacy groups, providers, and the public about this serious problem -- and recommends proven strategies to move Illinois towards the reduction of premature births. The report provided legislators with an overview of the extent and costs of preterm births, outlined known medical and social risk factors of preterm birth, and provided recommendations for evidence-based medical and public health strategies, as well as state system and policy changes, to reduce preterm births. On the NPIHC website, learn more about the Perinatal Advisory Committee's seven recommendations and access slides from a related webinar.

AAP Updates Screening Guide for Retinopathy of Prematurity

In an update to its screening guide, a new American Academy of Pediatrics policy statement says carefully timed retinal exams should be conducted by a knowledgeable and experienced ophthalmologist on preterm babies at risk for retinopathy of prematurity (ROP). The policy statement, published December 31 in the journal Pediatrics, revises a 2006 statement on screening preterm infants for ROP. The new statement discusses characteristics of an effective program for detecting and treating ROP, including the timing of initial exams and intervals for subsequent re-examination.

Knowledge Path on Perinatal Maternal Stress & Child Outcomes

Maternal stress during and after pregnancy is associated with premature births; low-birthweight infants; infant mortality; and challenges in health, development, and learning in infancy and early childhood. A new tool from the Maternal and Child Health Library at Georgetown Library, "Maternal Distress in the Perinatal Period and Child Outcomes Knowledge Path," compiles current knowledge and resources on maternal stress during and after pregnancy. The knowledge path is a helpful tool for health professionals, program administrators, policymakers, and researchers to learn more about maternal stress and child outcomes, to integrate what they know into their work to improve care, for program development, to locate training resources, and to answer specific questions. A separate brief lists resources for families.

HMHB & HER Foundation Blog About HG

The National Healthy Mothers, Healthy Babies Coalition (HMHB) kicked off the New Year with a new blog post on a timely topic. "Understanding Hyperemesis Gravidarim (HG)," co-authored by Ann Marie King of the HER Foundation and UCLA genetics researcher Dr. Marlena Fejzo, educates about this serious but little-known pregnancy complication which increases risk for preterm birth, small for gestational age, and low birth weight. A condition long underfunded and little understood, HG's public profile has recently been raised by media coverage of Kate Middleton's pregnancy. Britain's Duchess of Cambridge suffers from hypermesis gravidarum and was hospitalized for treatment in late 2012. Many moms and families who have experienced HG are responding to the blog post by sharing their stories and their perspectives, via blog comments and via Facebook and Twitter. We invite you to read and share the blog post, and join the conversation!

Graham's Foundation

Graham's Foundation, a nonprofit organization founded in 2009 by Jennifer and Nick Hall in memory of their son Graham, offers practical and emotional support to parents of premature babies. The foundation supports parents with care packages for NICU, transition home, and remembrance, as well as through a vibrant online community and social media presence, providing a place for parents to share their stories and find support.

Sources:

• www.npihc.org
• www.idph.state.il.us
• www.aap.org
• www.mchlibrary.info
• www.hmhb.org
• www.grahamsfoundation.org

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters – December 2012

In this issue of Preemie Matters: NPIHC's November Webinar • Perspectives from Preemie Mom • AWHONN's "Go the Full 40" Campaign • Social Networking on World Prematurity Day • Keep 'Em Cookin'

NPIHC's November Webinar

Missed our November 15th webinar on the Oklahoma Infant Alliance's Late Preterm Infant Toolkit? It is now archived online, so be sure to check out this learning opportunity and share with colleagues. The toolkit is a key resource for physicians, allied health professionals, and families. It was developed in response to Oklahoma's 13.8% rate of preterm deliveries, with over three-fourths of those being late preterm according to the most recent data. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies working with late preterm infants. The webinar provided an overview of the problem, the process of developing a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit.

Perspectives from Preemie Mom & NPIHC Steering Committee Member Deb Discenza

A new post on the National Premature Infant Health Coalition blog features perspective and words of encouragement from a preemie mom and NPIHC steering committee member. Deb Discenza, author of The Preemie Parent's Survival Guide to the NICU (available through PreemieWorld.com) and moderator of the Preemie Support Forum at Inspire.com, is the mother of a now school-age daughter born at 30 weeks. Deb's unique vantage point on the challenges faced as preemie babies grow up has informed her education and advocacy work, supporting the families of children born too soon and too small. We thank Deb for her contribution!

Sign & Share the Pledge: AWHONN's "Go the Full 40" Campaign

The Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN) is promoting its "Don't Rush Me... Go the Full 40" campaign with a national pledge drive, encouraging pregnant women who are healthy and well to wait for spontaneous labor. In addition to targeting expectant moms, AWHONN also encourages healthcare providers and friends and family of pregnant women to sign the pledge, with a goal of more than 50,000 signatures. To join this effort, sign the pledge directly or visit the AWHONN Facebook page. After lending your signature, you'll be invited to share it with up to 50 of your friends and colleagues.

Social Networking on World Prematurity Day

On November 17th the second World Prematurity Day brought together hundreds of associations, professionals, and private sector organizations, as well as thousands of individuals. They participated in national events and shared personal stories through a global campaign raising awareness of preterm birth. The World Prematurity Day page on Facebook engaged more than 50,000 new individuals and shared personal stories from 83 countries. The discussion on Twitter reached nearly 30 million advocates through a 12-hour, multi-partner #WorldPrematurityDay Twitter Relay.

Keep 'Em Cookin'

Guided by the mission of preventing preterm birth, Keep 'Em Cookin' is an online educational community and support group for pregnant women on bed rest and all expectant moms experiencing high-risk pregnancies. Named Pregnancy magazine's "Website We Can't Live Without," Keep 'Em Cookin meets a significant need for the nearly one in five women who will be put on bed rest due to pregnancy complications that could cause premature birth, providing information and support to make the journey easier.

Future Needs & Challenges for "Extreme Preemies"

Two studies published in the British Medical Journal and presented at a briefing in London earlier this month suggest that the number of children and adults with disabilities caused by premature birth will rise in coming years, likely increasing demand for health, educational and social services. The first study examines short-term outcomes for babies born extremely preterm, and the second looks at later developmental and neurological outcomes. The researchers suggest that as the number of extremely preterm babies who survive and are able to go home from the hospital continues to rise, individuals, families, and communities will face new challenges and will need support networks. As noted by these teams, rates of premature birth are rising across many European countries, with particularly high rates in Great Britain and the United States.

Sources:

• www.npihc.org
• http://www.awhonn.org/
• http://www.keepemcookin.com
• www.bmj.com

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters – November 2012

In this issue of Preemie Matters: Oklahoma Infant Alliance's Late Preterm Infant Toolkit • Prematurity Awareness Month • Minnesota Prematurity Coalition & the Discharge Planning Checklist for Late Premature Infants • World Prematurity Day on Facebook • Improving Breast Milk Feeding Rates for Preemies in California NICUs 

NPIHC Webinar: Oklahoma Infant Alliance's Late Preterm Infant Toolkit

Join the National Premature Infant Health Coalition TOMORROW, Thursday, November 15th at 2 p.m. Eastern Time, for a webinar on the Oklahoma Infant Alliance Late Preterm Infant Toolkit. Oklahoma has an unacceptable rate of preterm deliveries at 13.8%, with over three-fourths of those born late preterm (10%) by the last data from the March of Dimes. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies who work with the late preterm infant. This webinar will describe the identified problem, the process of development of a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit for physicians, allied health, and families with a goal of reduction of morbidities associated with late preterm birth. Register today!

Prematurity Awareness Month

November is Prematurity Awareness Month, focusing the nation's attention on preterm birth. On November 13, March of Dimes released its 2012 Premature Birth Report Card, revealing that while the U.S. preterm birth rate continues to decline, we still earn an overall grade of "C" and face significant need for improvement. This month March of Dimes also leads a petition to "Light the White House Purple" as a symbol of hope to preemie families, and they are bringing together advocates asking Congress for passage of the PREEMIE Reauthorization Act. On November 17, World Prematurity Day, March of Dimes and partner organizations worldwide are asking everyone to help spread the word about the serious problem of preterm birth. Be sure to let us know what YOU or your organization did to mark this important health observance!

Minnesota Prematurity Coalition & the Discharge Planning Checklist for Late Premature Infants

The Minnesota Prematurity Coalition's mission is reducing premature births in the state and advocating for infants who are born prematurely and their families. Founded in 2009, they have actively worked with community partners and organizations to bring awareness to this very important issue. In 2011, the Minnesota Legislature passed a statute creating the Minnesota Task Force on Prematurity. Members of the Prematurity Coalition as well as members of the Legislature, Department of Health and Department of Education all serve on the Task Force.

After surveying hospitals throughout the state, the Task Force discovered a great need for information on the treatment and discharge requirements of the late preterm infant. In September 2012, the finalized Discharge Planning Checklist for Late Premature Infants was distributed.

The Task Force is currently working on a final report to the Minnesota Legislature, due in January 2013, which will include evidence-based recommendations to reduce prematurity in Minnesota - including any draft legislation necessary for implementation. Find information including meeting dates, action items and resources at the website, or contact Coalition Manager Bonnie Hansen at 320-290-4909 or MPO@clearwire.net.

World Prematurity Day on Facebook

This year the observance of World Prematurity Day has a significant social media component, bringing together partners, supporters and families from around the globe in a collaborative digital space. Check out the World Prematurity Day page on Facebook, where you can read stories from around the world and share your own, watching the virtual world map light up when new stories are added to the communal narrative. Join the effort by updating your own Facebook status to help others understand the problem, changing your Facebook cover image, or grabbing a badge for your blog or website.

Improving Breast Milk Feeding Rates for Preemies in California NICUs

A new study published in the journal Pediatrics examines how California hospitals improved breast milk feeding rates for very low-birthweight preemies. Eleven NICUs in the California Perinatal Quality of Care Collaborative participated in an Institute for Healthcare Improvement-style collaborative to increase NICU breast milk feeding rates. Over the 12-month study and subsequent six-month follow-up period, the 11 participating hospitals increased their rates of breast milk feeding for NICU babies at discharge from 55 percent to 64 percent, bringing these hospitals up to the average rates for the state. Participating hospitals also reduced the rate of a serious complication of prematurity - the bowel disease known as necrotizing enterocolitis - by two-thirds, from seven percent to about two percent of all infants in their NICUs. Among the important changes hospitals made: Increasing babies' skin-to-skin time with their mothers and improving the education of NICU staff about breast milk feeding.

Sources:

• www.npihc.org
• http://www.mnprematuritycoalition.org/
• http://pediatrics.aappublications.org
• www.marchofdimes.com

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters – October 2012

In this issue of Preemie Matters • NPIHC November Webinar • Low-Income Preemies • Pregnancy & Infant Loss Awareness Day • Papas of Preemies • Celine Dion PSA • Prematurity Awareness Month • NPIHC Membership.

NPIHC Webinar: Oklahoma Infant Alliance's Late Preterm Infant Toolkit

Join the National Premature Infant Health Coalition on Thursday, November 15th at 2 p.m. ET for a webinar on the Oklahoma Infant Alliance Late Preterm Infant Toolkit. Oklahoma has an unacceptable rate of preterm deliveries at 13.8%, with over three-fourths of those born late preterm (10%) by the last data from the March of Dimes. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies who work with the late preterm infant. This webinar will describe the identified problem, the process of development of a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit for physicians, allied health, and families with a goal of reduction of morbidities associated with late preterm birth. Register today!

Heightened Risks for Low-Income Preemies

New research from Johns Hopkins Children's Center finds that preterm babies of low-income parents are at high risk for developing dangerous brain bleeds that require multiple surgeries and extensive follow-up treatment. Published in Pediatric Neurosurgery, the small study also found that preemies from lower-income families and those with public health insurance had fewer scheduled follow-up appointments and more emergency room visits, compared to preemies with private health insurance and those from higher-income homes. The team says their findings need to be replicated on a wider scale to learn more about the reasons behind these disparities, but note that their findings represent a "sobering reminder of the role socio-economic factors can play in health outcomes."

Commemorating Pregnancy & Infant Loss Awareness Day

To mark October 15th as Pregnancy and Infant Loss Awareness Day, the National Premature Infant Health Coalition used social media to promote resources for both families and professionals from partners including the National SUID/SIDS Resource Center and First Candle. On NPIHC's Facebook page, we also created a special post marking the observance and inviting families to share their stories, honor and remember. Many did, and 74 friends and colleagues shared the post through their own social media channels. We encourage families to continue to contribute their stories and remembrances to this online tribute.

Partner Profile: Papas of Preemies

Online support community Papas of Preemies gives fathers a voice in the world of prematurity and takes a dad's perspective in navigating the journey through the neonatal ICU and beyond. Founded by a preemie dad, the Papas of Preemies community - networked through a website and blog, Facebook page and Twitter handle - offers fathers a safe and welcoming space in which to share their stories and connect with others who have been through similar experiences. Their message: You are not alone.

Celine Dion PSA Brings Global Attention to Prematurity

A new TV PSA featuring Celine Dion calls on families to use social media to connect with each other and to ask governments for action preventing premature births. Produced in English and French versions, the PSA is part of a global campaign from partners March of Dimes, Partnership for Maternal Newborn and Child Health, Save the Children, and the World Health Organization (WHO). "I share the fears and concerns of all parents knowing that more than one million babies around the world die every year because they didn't get enough time to grow," Dion says in the PSA, directing viewers to a World Prematurity Day Facebook page where they can write about and post a picture of their child, family member, or friend whose child was born too soon. A world map lights up each individual's posting and allows them to connect with and support others around the globe.

Gearing Up for Prematurity Awareness Month

November is Prematurity Awareness Month, when sponsor March of Dimes focuses the nation's attention on premature birth. The awareness month kicks off November 1 with the release of the 2012 Premature Birth Report Card, followed by World Prematurity Day on November 17, when partner organizations worldwide raise awareness about preterm birth as a serious public health problem. Let us know how you are taking part in this year's prematurity health observance!

Join Us! Become a Member of the National Premature Infant Health Coalition

Are you interested in becoming a National Premature Infant Health Coalition member? Members work collaboratively with the Coalition to disseminate information and news, promote events, and reach the broad NPIHC professional and parent network. If you are a nonprofit organization or entity, you're eligible to complete the application for membership. All friends of the Coalition are invited to check out our resources and connect with us, but those eligible for membership are encouraged to take the extra step of completing the application and making membership official.

Sources:

• www.npihc.org
• www.hopkinschildrens.org
• www.papasofpreemies.com
• www.marchofdimes.com

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters - September 2012

In this issue of Preemie Matters: NPIHC Membership  • November Webinar  • NICU Professionals Survey  • Raising Flu Awareness  • Predicting Preterm Birth  • Innovative Texting Program  • Project Sweet Peas  • Prenatal Depression Risk.

Become a Member of the National Premature Infant Health Coalition

Are you interested in becoming a National Premature Infant Health Coalition member? If you're a nonprofit organization or entity, you are eligible to complete the application for membership. Members work collaboratively with the Coalition to disseminate information and news, promote events, and reach the broad NPIHC professional and parent network.

NPIHC Webinar: Oklahoma Infant Alliance's Late Preterm Infant Toolkit

Join the National Premature Infant Health Coalition on Thursday, November 15th at 2 p.m. Eastern Time for a webinar on the Oklahoma Infant Alliance Late Preterm Infant Toolkit. Oklahoma has an unacceptable rate of preterm deliveries at 13.8%, with over three-fourths of those born late preterm (10%) by the last data from the March of Dimes. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies who work with the late preterm infant. This webinar will describe the identified problem, the process of development of a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit for physicians, allied health, and families with a goal of reduction of morbidities associated with late preterm birth. Register today!

Survey of NICU Professionals Aims to Improve Mental Health Support for Families

Caring for babies in the NICU is a challenging, sometimes stressful, job. Caring for the families of these babies can be just as challenging. In an effort to better support families, a team of psychologists at the Children's Hospital of Philadelphia (CHOP) are gathering data about mental health services being offered to NICU parents and families around the world. If you are a NICU professional, you can contribute to this knowledge by completing a brief (less than 10 minutes), anonymous online survey. You have the option to provide your email address at the survey's end, to receive a summary of compiled data.

Partnership Raises Awareness of Flu Prevention for Children with Neurologic Disorders

CDC, American Academy of Pediatrics (AAP), Families Fighting Flu, and Family Voices are partnering to spread the message about the importance of influenza vaccination for children with neurologic disorders such as cerebral palsy, intellectual disability, or epilepsy. The effort responds to a CDC study published in the journal Pediatrics which found that a disproportionately high number of children with neurologic disorders died from flu-related complications during the 2009 H1N1 pandemic. The flu may be particularly dangerous for individuals who have trouble with muscle function, lung function or difficulty coughing, swallowing or clearing fluid from their airways -- and the most common complication for the children in this study were influenza-associated pneumonia and acute respiratory distress syndrome (ARDS). Partnering organizations are coordinating communication activities to reach parents and caregivers, primary care clinicians, developmental pediatricians and neurologists, raising awareness about the need for prevention in this population.

New Test May Predict Preterm Birth

A team of researchers in Sweden say they have developed a new test capable of predicting whether a pregnant woman experiencing preterm contractions will give birth within one week. With accuracy of 75 to 80%, the test measures two proteins and combines the findings with the results of an ultrasound exam of cervical length. The findings have been published in BJOG: International Journal of Obstetrics and Gynaecology. According to the study's lead researcher, "We will need to conduct further studies before the method can be used in full, but if the results of these studies are good, the test will hopefully lead to new types of treatments to prevent premature birth and treat the serious complications resulting from it."

Text-Messaging Service Keeps NICU Parents Connected 24/7

At the University of South Alabama Children's & Women's Hospital in Mobile, a new "Crib Notes" program is keeping the parents of NICU infants informed about and connected to their babies around the clock. As physicians, nurses, and respiratory therapists care for the tiniest neonatal ICU patients, they type details about their days and nights and other health data into computers stationed in the unit. The information is used to generate text messages sent to the mobile phones of parents who choose to receive them, written from the baby's point of view and typically dispatched around 5 a.m. - in time to be read by a parent who has been away from baby overnight.

Partner Profile: Project Sweet Peas

Project Sweet Peas is a nonprofit organization based in Pennsylvania and run by volunteers across the country since 2009, providing comfort to the families of children hospitalize in ICUs and those who have experienced pregnancy and infant loss. Earlier this year, the organization delivered its 4,000th care package, in addition to providing services to comfort of families, furthering the bond between parents and children and creating treasured keepsakes to families who have experienced a loss. They also host a supportive and informative social media community for parents and advocates at the Project Sweet Peas Facebook page.

Depression During Pregnancy Associated with Preterm Birth

A new study published in the American Journal of Obstetrics and Gynecology and presented at the annual meeting of the Society for Maternal-Fetal Medicine adds to the evidence of a link between prenatal depression and premature delivery. Researchers found that of more than 14,000 pregnant women included in the study, those who screened positive for possible clinical depression had an increased chance of preterm birth: 14% delivered before the 27th week, versus 10% of other women. However, the findings do not suggest a direct causal relationship between prenatal depression and prematurity, and the extent to which treatment may mitigate the association remains unclear. Researchers on this study urge clinicians working with pregnant women who have depressive symptoms to educate them about the warning signs of preterm labor.

Sources:

• www.npihc.org
• www.chop.edu
• http://cdc.gov
• www.bjog.org
• www.ajog.org

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters - August 2012

In this issue of Preemie Matters  • Vision Development & the Premature Infant Webinar Slides and Audio  •  New Prematurity Brief from Georgetown's MCH Library  •  Preemie Parent Alliance Summit  •  Still Standing  •  Safety of Preemie Birth Modes  •  A Pediatrician's Perspective on NICU Care.

Webinar Slides & Audio: Vision Development & the Premature Infant

Thanks to all who joined our August 9th webinar, "Vision Development and the Link to Overall Development in the Premature Infant" with Glen Steele, O.D. FCOVD. Dr. Steele led a discussion on the most prevalent and significant issues involved in eye and vision care and development during infancy, focusing on early detection and intervention options. He also shared information on incidence of vision problems in preterm infants, how vision links to overall development, current approaches to care and opportunities for parents and providers to positively affect the lives of these children. If you missed the webinar or would like to share its content with colleagues, visit the archived slides and audio online.

New Resource: Prematurity & Preterm Birth Brief from Georgetown's MCH Library

The Maternal and Child Health Library at Georgetown University has posted a new resource brief on prematurity and preterm birth. The brief includes links to selected websites, an automated PubMed search that gives the reader the latest research literature from the National Library of Medicine on this topic, and a bibliography of publications from the online catalog of the MCH Library. Access this new resource brief at the MCH Library site.

Partner Event: Preemie Parent Alliance Summit

Registration ends September 1 for the Preemie Parent Alliance's annual summit, which brings together Alliance members and support organizations interested in learning more about this vibrant and growing network. Set for September 20-21, 2012 in Chicago, the summit provides vital networking opportunities and creates opportunities for partnerships across all segments of the prematurity community. Speakers include noted neonatologist and author of For the Love of Babies Dr. Sue Hall, as well as March of Dimes Associate Director of Domestic and Global Partnerships Phyllis Williams-Thompson. Working sessions will be led by preemie mom and PPA member Gigi Khonyongwa-Fernandez. A Thursday evening "Power to Grow" welcome reception will be hosted by PPA members Graham's Foundation and Eli's Hope. The Preemie Parent Alliance meets a unique need, fostering collaborative opportunities for preemie parent support organizations across the country and building relationships between member organizations and the many professional organizations and associations whose work directly affects the care of fragile babies. Learn more, join the Alliance, and register for the summit at the PPA site. Questions? Contact Keira Sorrells at keira.sorrells@gmail.com or (601) 345-1772.

Partner Profile: Still Standing

Do you know about Still Standing? The online magazine and support community for those who have lost a child or experienced infertility was created by mom and Preemie Parent Alliance member Franchesca Cox. Its multi-faceted mission: Encouraging individuals and families to embrace life after loss and infertility; connecting individuals and families with others around the world who share similar experiences; and serving as a resource for families, friends, and professionals who support those going through the loss of a child or infertility.

Vaginal Deliveries as Safe as C-Sections for Most Preterm Births

A study published in the August issue of the American Journal of Obstetrics & Gynecology finds that for most babies born very prematurely, vaginal deliveries are as safe as cesarean sections. The only exception: babies in the breech position who are delivered at less than 32 weeks' gestation had a significantly lower risk of mortality when delivered during a planned c-section. Lead researcher Dr. Uma Reddy of the Eunice Kennedy Shriver National Institute of Child Health and Human Development at NIH said in a journal news release, "Selecting a route of delivery at less than 32 weeks' gestation is a difficult clinical decision, given the high rate of infant mortality and morbidity, as well as the maternal risks associated with Cesarean delivery. This information has direct clinical applications and is crucial for counseling families about the benefits and risks of attempting vaginal delivery in this situation."

'In Preemies, Better Care Means Hard Choice'

An August 13 New York Times op-ed column by pediatrician Dr. Rahul Parikh explores the clinical and emotional challenges facing neonatologists and preemie parents as NICU care, technology, and physician perspective of the tiniest, most fragile preterm babies has evolved. He writes, "In the 1960s, when the first NICUs opened, premature infants had a 95 percent chance of dying. Today, they have a 95 percent chance of survival. This has...changed our perception of the premature baby as 'a patient to be cared for, rather than an object to be pitied."

Sources:

• www.hmhb.org
• www.facebook.com/NPIHC
• http://health.ucsd.edu
• http://pediatrics.aappublications.org
• www.thelancet.com

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters - June 2012

In this issue of Preemie Matters: NPIHC Summit: Connections 2012  •  NPIHC Updates: What's New with the National Premature Infant Health Coalition  •  NPIHC Webinar: Vision Development & the Link to Overall Development in the Premature Infant  •  New Report: MedImmune Advocacy's Premature Infant Health Summits 2011  •  Partner Profile: Eli's Hope  •  New Research: Study Finds Most 'Extreme Preemies' Grow Into Happy, Healthy Teens.

Connections 2012

We had a great turnout for an inspiring two days of education and networking in Washington, DC during NPIHC's annual summit, Connections 2012. Among the standout moments were keynotes from Dr. Nils Bergman and blogger Heather Spohr, along with talks and roundtables from preemie parents, pediatrician and author Dr. Laura Jana, Dr. Mitchell Goldstein, Ellen Levy and more. The summit also brought together representatives from eight regional prematurity networks across the nation for a special session, and included a meeting of the NPIHC Steering Committee. Revisit summit highlights by checking out participants' live-messaging on Twitter and photos on our Facebook page.

What's New with the National Premature Infant Health Coalition

Among the outcomes of the Steering Committee's work during NPIHC's annual summit in Washington, DC: Refined vision and mission statements that guide the way forward for this vibrant Coalition of prematurity advocates. The National Premature Infant Health Coalition is a collaborative of professional, clinical, community health and family support organizations focused on improving the lives of premature infants and their families. Our vision is for premature infants and their families to have the services and support they need for quality care and optimal health and wellness throughout the lifespan. NPIHC's mission is to promote the lifelong clinical, health, education and supportive services needed by premature infants and their families. In other news, we continue to grow our social networking presence with NPIHC's new Facebook page and through the National Healthy Mothers, Healthy Babies Coalition's (HMHB) Twitter feed. Please join us in these social spaces for the latest news on prematurity, as well as mutual support and information-sharing among partners. Summit participants had the opportunity to preview NPIHC's new website, which will be live later this summer!

NPIHC Webinar: August 9 Vision Development & the Link to Overall Development in the Premature Infant

Our next webinar, "Vision Development and the Link to Overall Development in the Premature Infant," takes place Thursday, August 9, 2012 from 2 to 3 p.m. Eastern. Our speaker, Glen T. Steele, O.D. FCOVD, will provide a focused discussion of the most prevalent and significant issues involved in eye and vision care and development during infancy. Professor at the Southern College of Optometry in the Pediatric Service and chair of the American Optometric Association InfantSEE Committee, Dr. Steele will focus on when problems are discovered and early intervention options for children. He will also present information on incidence of vision problems in premature infants, how vision links to overall development, current approaches to care and opportunities for parents and providers to positively impact the lives of these children. Register today!

New Report: MedImmune Advocacy's Premature Infant Health Summits 2011

In 2009, MedImmune Advocacy conducted six Premature Infant Health Summits across the country, presenting information and driving dialogue on the "cornerstone issues" facing premature infants and families. In 2011, they reconvened premature infant health advocates to host another series of summits, highlighting some of the programs that ensued and progress made. Participants included some 459 healthcare providers; advocacy, professional and parent organizations; public health officials; health insurers; policymakers and others. A new report from the 2011 Premature Infant Health Summits, with key takeaways and feedback from participants, is now available as a downloadable PDF on the Preemie Voices website.

Partner Profile: Eli's Hope

Eli's Hope, a faith-based nonprofit organization founded in 2011, serves Chicago-area NICU families to meet both practical and spiritual needs. They provide NICU support gift bags at partnering hospitals; bereavement services; "Home from the NICU" transitioning; and family activities including Sibling Day, Preemie Moms/Dads Night Out, and seminars like NICU Survival Guide and Scrapbooking Your NICU Sweetie. Read about their participation in NPIHC's 2012 summit on the Eli's Hope blog!

Study Finds Most 'Extreme Preemies' Grow Into Happy, Healthy Teens

"The tiniest, most underweight babies emerge as teens who feel good about themselves, rating their health about the same as children born at normal weights." These are among the insights from a new study to be published in the July issue of the journal Pediatrics. The study from a team at Case Western Reserve University Medical School in Cleveland tracked children who weighed less than 2.2 pounds at birth. They found that 69 percent of these teens reported their health as "good to excellent" as adolescents - roughly the same rate reported by both a control group of teens who weighed at least 7 pounds as newborns, and the general population of U.S. adolescents.

Don't forget to visit us on Facebook!

Sources:

• www.hmhb.org
• www.facebook.com/NPIHC
• http:/health.ucsd.edu/
• http://pediatrics.aappublications.org
• www.thelancet.com

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters - May 2012

In this issue of Preemie Matters - June 14-15 in Washington, DC: National Premature Infant Health Coalition Summit  •  Webinar Slides & Audio Available Online: Acute Stress Disorder, PTSD & Postpartum Depression in Parents of NICU Babies  •  "Born Too Soon" Report Provides First National, Regional & Global Estimates of Preterm Birth  •  Partner Profile: Life After NICU  •  Video Shares Researcher & Family Stories on Retinopathy of Prematurity  •  NPIHC Facebook Page Brings Partners Together.

June 15th in Washington, DC: National Premature Infant Health Coalition Summit

Connections 2012 is coming soon! Don't miss a keynote address by pioneer researcher and world-renowned expert in Kangaroo Mother Care, Dr. Nils Bergman; a panel on developmental care with Dr. Laura Jana, Dr. Mitchell Goldstein, and Dr. Ricki Goldstein from the NICU Follow-up Club; a session on using social media to educate and communicate in the field of prematurity featuring blogger and advocate Heather Spohr, John Richards, and LinkedIn founding advisory board member Dr. Ellen Levy; roundtable discussions on a variety of topics; and a town hall for all attendees to share creative strategies for meeting current challenges. Help us promote Connections 2012! Share the exciting plans, along with the online registration form.

Webinar Slides & Audio Available Online: Acute Stress Disorder, PTSD & Postpartum Depression in Parents of NICU Babies

We had over 300 individuals participate in the May 9th NPIHC webinar, "Acute Stress Disorder (ASD), Posttraumatic Stress Disorder (PTSD) and Postpartum Depression (PPD) in Parents of NICU Babies." The presenter, Dr. Michael Hynan, discussed symptoms, trajectories of recovery, interventions and model NICU programs - as well as research on the potentially dangerous relationship between high levels of emotional distress in new parents and impaired infant development. Slides and audio from the webinar are now available online. You can also download a PDF of the full presentation with references.

"Born Too Soon" Report Provides First National, Regional & Global Estimates of Preterm Birth

A report released earlier this month-"Born Too Soon: The Global Action Report on Preterm Birth"-provides the first-ever national, regional, and global estimates of preterm birth and identifies priority actions. The report is a joint effort of almost 50 organizations, led by March of Dimes; the Partnership for Maternal, Newborn & Child Health; Save the Children; and the World Health Organization (WHO), in support of the Every Woman Every Child Effort launched by the UN Secretary General. Extensive media coverage followed the report's release, with coverage from The New York Times, TIME magazine, and others.

Partner Profile: Life After NICU

Life After NICU, a blog and online support forum for preemie parents, was founded in the fall of 2011 by two NICU moms whose children were both hospitalized at Rush-Copley Medical Center in Illinois. These parents saw a need to create a support group for others "at all stages of the journey," from pre-delivery until long after heading home from the neonatal ICU. Through the blog and their Facebook page, Life After NICU provides preemie moms and dads with a safe space in which to share personal stories, process emotions and share resources and information.

Video Shares Researcher & Family Stories on Retinopathy of Prematurity

A new outreach video from the National Eye Institute (NEI) at the National Institutes of Health (NIH) features researchers and families sharing stories of hope for Retinopathy of Prematurity (ROP). Clinical research conducted by NEI has shown that through an eye exam, doctors can identify infants who are most likely to benefit from early treatment for this potentially blinding eye condition, resulting in better vision for many children. ROP is one the leading causes of blindness among children in the United States, and occurs in as many as 15,000 children born prematurely in the U.S. each year. Share this video with others as tool to educate about ROP and important research being done in this area.

NPIHC Facebook Page Brings Partners Together

Have you "liked" the new National Premature Infant Health Coalition (NPIHC) Facebook page? We are enjoying using this platform to help partners in the field of prematurity connect to share information, network, and provide support. It's the only forum that connects multidisciplinary professionals working in the field of prematurity. Please share this resource and feel free to post on the page to promote news, events, research, and more. We want to hear from you!

Sources:

• www.hmhb.org
• www.marchofdimes.com
• www.nei.nih.gov
• life-after-nicu.blogspot.com
• www.facebook.com/NPIHC

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters - April 2012

In this issue of Preemie Matters - June 14-15 in Washington, DC: National Premature Infant Health Coalition Summit  • NPIHC Webinar: Acute Stress Disorder, PTSD & Postpartum Depression in Parents of NICU Babies  •  Let's Connect on Facebook  • Partner Profile: Supporting Premature Infant Health Nutrition (SPIN)  •  Study: Parents' Psychologicval Distress Associated with Preemie Behavior Problems  •  Yahoo! Group Brings Together Lactation Consultants Working in NICUs  •  Cervical Pessary May Prevent Preterm Birth in High-Risk Women.

June 14-15 in Washington, DC: National Premature Infant Health Coalition Summit

NPIHC is hosting Connections 2012 on June 14-15, 2012 at the Phoenix Park Hotel in Washington, DC. It's going to be a great event including an expert panel discussion on developmental care, a key speaker on strategies for using social media to educate and communicate in the field of prematurity, a town hall on critical issues in prematurity, a cocktail reception, and networking opportunities. We hope you can make it! If you plan to attend, please complete the online registration form as soon as possible.

NPIHC Webinar: Acute Stress Disorder, PTSD & Postpartum Depression in Parents of NICU Babies

Register online for the latest National Premature Infant Health Coalition webinar: "Acute Stress Disorder (ASD), Posttraumatic Stress Disorder (PTSD) and Postpartum Depression (PPD) in Parents of NICU Babies" on May 9, 2012 from 2 to 3 p.m. Eastern Time. Our speaker, Dr. Michael Hynan, will describe the symptoms of ASD, PTSD and PPD, different trajectories of recovery and research on a potentially dangerous relationship between high levels of emotional distress in new parents and impaired infant development. Dr. Hynan will discuss potential interventions as well as model NICU programs, including teaching parenting competencies and developmental care; screening mothers and fathers for emotional distress; parent support groups led by veteran NICU parents, psychologists and psychosocial programs in the NICU; family-centered care; and referral networks.

Let's Connect on Facebook

Check out the new Facebook page for the National Premature Infant Health Coalition (NPIHC)! The page is a great place to connect with colleagues and friends in the prematurity field, as well to keep up with the latest prematurity-related news, research, events, and resources. "Like" the page and let your networks know about it. Do you have content you'd like to share on the page? Post it to the wall or send email to agoodman@hmhb.org.

Partner Profile: Supporting Premature Infant Nutrition (SPIN)

The SPIN program (Supporting Premature Infant Nutrition) at UC San Diego Health System was developed to address the challenges of helping mothers produce sufficient breast milk for their premature infants, and to improve the manner in which NICUs support optimal nutrition and growth in their most vulnerable population of patients. A new website and online educational videos are broadening SPIN's awareness and providing resources to both parents and NICU staff. The site offers a variety of patient resources, such as pumping log sheets, milk calculator and recipes, lactation research, and publications.

Parents' Psychological Distress Associated with Preemie Behavior Problems

A new study published in the March 12 online edition of the journal Pediatrics and covered by US News & World Report finds that children born prematurely at very low birthweight are more likely to develop behavioral problems when their parents are acutely stressed or depressed. The psychological well-being of both mothers and fathers was found to contribute to the behavioral problems of preemie children at age three. The study's authors say their findings spotlight the effects of the multi-faceted stress experienced by preterm children and their parents - as well as the need for adequate support for these families well beyond hospital discharge.

Yahoo! Group Brings Together Lactation Consultants Working in NICUs

Did you know? A Yahoo! group for lactation consultants who work with mothers and infants in the NICU is bringing these professionals together to network, consult with colleagues, and share updates on what's happening in NICUs across the US. The group is open to all interested.

Cervical Pessary May Prevent Preterm Birth in High-Risk Women

Findings from the first randomized trial examining the use of a pessary to prevent preterm birth have been published in The Lancet. The study found that pregnant women at high risk for preterm birth due to a short cervix can substantially reduce their risk of premature delivery through the insertion of a cervical pessary during the second trimester. The study also finds that the pessary intervention is a safe, low-cost, relatively non-invasive option. Ninety-five percent of the women who received a pessary in this study said they would recommend the intervention to others.

Sources:

• www.hmhb.org
• www.facebook.com/NPIHC
• http://health.ucsd.edu
• http://pediatrics.aappublications.org
• http://www.thelancet.com

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters – February 2012

In this issue of Preemie Matters: Study: Latino Prematurity Risk Increases with Time Spent in United States  •  HHS Announces "Strong Start"  •  Webinar Available Online: Pediatrix BabySteps Clinical Data Warehouse (CDW) & Implications for the Future of Neonatal Care  •  Partner Profile: Caiden's Hope  •  Research Finds Severe Morning Sickness Linked to Preterm Birth

Study: Latino Prematurity Risk Increases with Time Spent in United States

Research recently presented at the annual meeting of the Society for Maternal-Fetal Medicine finds that while new Latino immigrants have a low risk of delivering premature infants, their risk increases the longer they reside in the US and is highest among American-born Latinas. The increased risk was not related to the woman's age, body mass index, marital status, toxic exposures, diet, key health indicators or socioeconomic status - each of which the study adjusted for. One possible explanation cited by some evaluating the findings: the role of extended family and its greater prominence in immigrants' native homes.

HHS Announces "Strong Start"

This month the US Department of Health and Human Services (HHS) launched a new "Strong Start" initiative aimed at increasing the number of healthy deliveries and reducing preterm births nationwide. HHS will provide more than $40 million in grants to test ways to reverse current trends, as well as a public campaign to reduce early elective deliveries. The initiative involves many agencies within HHS and will include efforts by the Centers for Medicare and Medicaid Services (CMS), Centers for Disease Control and Prevention (CDC), Health Resources and Services Administration (HRSA) and the Administration on Children and Families. HHS will also work with a number of professional organizations on implementation.

Webinar Available Online: Pediatrix BabySteps Clinical Data Warehouse (CDW) & Implications for the Future of Neonatal Care

Missed our February 15th webinar with Dr. Alan Spitzer? You can still take part in this learning opportunity, via audio and slides now archived online. Dr. Spitzer shared exciting insights from the Pediatrix BabySteps Clinical Data Warehouse (CDW), a novel tool offering a wealth of information about neonatal outcomes and care. This resource represents the practice of newborn medicine ranging from small community intensive care units to some of the largest neonatal intensive care units in the United States, and its value in defining outcome measures, quality improvement projects and research continues to grow annually.

Partner Profile: Caiden's Hope

Caiden's Hope, a nonprofit NICU-family support organization serving Texas and California, is founded on a simple but powerful belief: "Having a child in the NICU is enough stress. Parents shouldn't then have to sleep on the hospital floor." Caiden's Hope alleviates the unexpected financial burdens of travel and hotel stays for families whose infants have necessary, extended, non-elective clinic or hospital stays. The organizational vision came to life after meeting a young NICU couple at the UCLA Medical Center: "Each night they would gather their belongings, leave their baby and move upstairs to an empty waiting room, where they would sleep on the floor in their sleeping bags. Showering in the hospital bathroom the next morning, they would be back downstairs ready to care for their child." See Caiden's Hope families share their stories.

Research Finds Severe Morning Sickness Linked to Preterm Birth

A new study is significant news for the roughly one percent of pregnant women who suffer from extreme morning sickness, known as hyperemesis gravidarum, and the health professionals who care for them. The study, presented earlier this month at the annual meeting of the Society for Maternal-Fetal Medicine and reported by MSNBC, Fox News and others, found that women with hyperemesis gravidarum were 23% more likely to deliver their babies before 34 weeks. Dr. Gary Stanziano and colleagues from Alere Health, analyzed information from 81,486 women enrolled in an Alere maternity education program who delivered between 2004 and 2011.

Sources:

• www.smfm.org
• www.cms.gov
• www.caidenshope.org
• www.hmhb.org
• www.smfm.org

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters - November 2011

In this issue of Preemie Matters: November 30th Congressional Briefing: "Preventing Prematurity - Progress and Pitfalls"  •  Virginia's Inova Fairfax Hospital: Nation's First Center of Excellence for Prematurity  •  Study: Children Born Moderately Preterm May Lag in Growth  •  Report Spotlights Experiences of Preemie Parents, Need for Ongoing Support  •  Holiday Cards Benefit Zoe Rose Memorial Foundation  •  November 30th Congressional Briefing:

"Preventing Prematurity - Progress and Pitfalls"

In response to the nation's grade of "C" on the annual Premature Birth Report Card, the March of Dimes will host a Congressional briefing, "Preventing Prematurity - Progress and Pitfalls," on Wednesday, November 30 from 12 to 1:30 p.m. at the Capitol Visitors Center HVC-201. Lunch will be provided. To RSVP, send email to: mputman@marchofdimes.com.

Virginia's Inova Fairfax Hospital: Nation's First Center of Excellence for Prematurity

The Joint Commission has recognized Inova Fairfax Hospital Neonatal Intensive Care Unit (NICU) as the first Center of Excellence for Prematurity in the United States. The neonatal mortality rate for infants born at Inova Fairfax is among the lowest in the nation. It is home to the largest subspecialty NICU in Northern Virginia, with a 75-bed, level III NICU caring for high-risk infants. The disease-specific survey determining this Joint Commission recognition looks at quality and process improvements, addressing areas including CA-BSIs, increasing breastfeeding and skin-to-skin, ROP and time to antibiotics.

Study: Children Born Moderately Preterm May Lag in Growth

Research published in the November edition of Pediatrics examines the growth of preschool-age children born moderately preterm. Using data from a community-based cohort of 1,123 children born between 32 and 35 weeks, they found that those born moderately preterm were shorter and weighed less at each assessment during the first four years of life than those born at term. Growth restraint was also found to be associated with being small for gestational age at birth. The authors conclude that children born moderately preterm may lag in growth and should be monitored closely during routine practice.

Report Spotlights Experiences of Preemie Parents, Need for Ongoing Support

A new report published in honor of Prematurity Awareness Month shares important insights from the parents of NICU infants - and highlights the need to support these families and children, both during the neonatal ICU stay and beyond. "Narratives from the NICU: Neonatal Intensive Care Units Through the Eyes of Parents" was created from surveys of Inspire.com's sizable and highly-engaged Preemie Support Forum. The report features a foreward by Sue L. Hall, MD, a neonatologist and author of For the Love of Babies: One Doctor's Stories About Life in the Neonatal ICU. Download the 32-page report here.

Holiday Cards Benefit Zoe Rose Memorial Foundation

Photographer Naomi Levit of Eugene, Oegon has created a set of limited edition holiday cards whose sales will benefit the Zoe Rose Memorial Foundation. Levit is donating 50% from all proceeds to support the Foundation's mission: helping the families of micro-preemies. Each card contains a holiday message suitable for sharing with family, friends or colleagues. Free shipping and early delivery makes these cards a good choice for sharing holiday greetings that give back to families experiencing prematurity.

Sources:

• www.marchofdimes.com
• www.inova.org
• pediatrics.aappublications.org
• www.inspire.com
• www.zoerose.org

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

Preemie Matters – October 2011

In this issue of Preemie Matters: PREEMIE Act of 2006 Needs Reauthorization Support in Congress  •  Prematurity Prevention Symposium: January 2012 in Washington, DC  •  Study: Preemies Have Higher Autism Risk  •  NICU Journal Helps Families Celebrate Preemie Milestones

PREEMIE Act of 2006 Needs Reauthorization Support in Congress

In an effort to better understand preterm birth as the leading cause of neonatal death - and to improve the health of millions of newborns in the United States - Congress passed the PREEMIE Act in 2006. This legislation has expanded research and other federal activities related to prematurity. The PREEMIE Act of 2006 sunsets later this year and must be reauthorized to continue as active legislation. In response, the Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN) has created an online Action Alert to help mobilize professionals, families and advocates in support of the PREEMIE Reauthorization Act of 2011 (S. 1440/H.R. 2679). AWHONN encourages you to email your US Representative and Senators, asking them to support the health of newborns by co-sponsoring this legislation.

Prematurity Prevention Symposium: January 2012 in Washington, DC

Mark your calendar for the Prematurity Prevention Symposium, "Examining National, State, Clinical and Community Efforts," set for January 19-20 at the Omni Shoreham Hotel in Washington, DC. The event is organized by March of Dimes in collaboration with the American College of Obstetricians and Gynecologists (ACOG), American Academy of Pediatrics (AAP), American Academy of Family Physicians (AAFP), American College of Nurse-Midwives (ACNM) and Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN). It will bring together healthcare providers, health insurers, policy makers, health purchasers, regulators, public health practitioners and advocates to network, showcase successful prevention programs, share best practices and problem-solve. The Symposium will also launch the Prematurity Prevention Network, a coalition of individuals and organizations dedicated to preventing prematurity.

Study: Preemies Have Higher Autism Risk

New research published in the journal Pediatrics and reported by Reuters finds that children born preterm face five times the risk of developing autism, compared to peers born full-term. While the study is not the first to report a higher prevalence of autism among low-birthweight babies, it appears to confirm earlier studies using authoritative tools. The findings do not show that being born early necessarily causes autism, but they contribute to questions about whether prematurity puts babies' brains at higher risk for injury - and whether such injury may be related to autism.

NICU Journal Helps Families Celebrate Preemie Milestones

Created by preemie mom Jessica Williams, "A Journey Home" is a comprehensive preemie baby book and NICU Journal helping families document and celebrate milestones. Williams recognized that the parents of many babies born preterm find using traditional baby books frustrating, and wanted to create a way for preemie families to share and remember the unique joys and milestones of a baby's NICU journey, homecoming, and later development, while also building resources. The baby book and NICU journal offer practical information a preemie parent needs, such as conversion charts, important contact information, going-home checklists, and plenty of space for individualized journal entries. For every 10 journals sold, Williams donates a copy to a NICU for distribution to families.

Sources:

• www.awhonn.org
• www.marchofdimes.com
• pediatrics.aappublications.org
• miraclebebe.com
• www.ehjournal.net

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.